Self-reported MeasUrement of Physical and PsychosOcial Symptoms Response Tool (SUPPORT-dialysis): systematic symptom assessment and management in patients on in-centre haemodialysis - a parallel arm, non-randomised feasibility pilot study protocol.

INTRODUCTION: Patients with kidney failure experience symptoms that are often under-recognised and undermanaged. These symptoms negatively impact health-related quality of life and are associated with adverse clinical outcomes. Regular symptom assessment, using electronic patient reported outcomes measure (ePROMs) linked to systematic symptom management, could improve such outcomes. Clinical implementation of ePROMs have been successful in routine oncology care, but not used for patients on dialysis. In this study, we describe a pilot study of ePROM-based systematic symptom monitoring and management intervention in patients treated with in-centre haemodialysis. METHODS AND ANALYSIS: This is a parallel-arm, controlled pilot of adult patients receiving in-centre maintenance haemodialysis. Participants in the intervention arm will complete ePROMs once a month for 6 months. ePROMs will be scored real time and the results will be shared with participants and with the clinical team. Moderate-severe symptoms will be flagged using established cut-off scores. Referral options for those symptoms will be shared with the clinical team, and additional symptom management resources will also be provided for both participants and clinicians. Participants in the control arm will be recruited at a different dialysis unit, to prevent contamination. They will receive usual care, except that they will complete ePROMs without the presentation of results to participants of the clinical team. The primary objectives of the pilot are to assess (1) the feasibility of a larger, randomised clinical effectiveness trial and (2) the acceptability of the intervention. Interviews conducted with participants and staff will be assessed using a content analysis approach. ETHICS AND DISSEMINATION: Ethical approval for this study was obtained from the University Health Network (REB#21-5199) and the William Osler Health System (#23-0005). All study procedures will be conducted in accordance with the standards of University Health Network research ethics board and with the 1964 Helsinki declaration and its later amendments. Results of this study will be shared with participants, patients on dialysis and other stakeholders using lay language summaries, oral presentations to patients and nephrology professionals. We will also be publishing the results in a peer-reviewed journal and at scientific meetings. PROTOCOL VERSION: 4 (16 November 2022). TRIAL REGISTRATION NUMBER: NCT05515991.

Los modos de relatar/contar/narrar el abuso sexual sufrido en la infancia por adolescentes en tratamiento psicoanalítico / The ways of telling/relate/narrate the sexual abuse suffered in childhood by teenagers in psychoanalytic treatment

Este artículo se propone presentar algunas consideraciones clínicas acerca de los modos de relatar, contar, narrar el abuso sexual en el contexto de los tratamientos psicoanalíticos y la posición del analista ante ello. En el marco de un diseño exploratorio, se ha trabajado con una muestra finalística conformada por diez adolescentes que han sido abusados sexualmente en la infancia y que realizan o han realizado tratamiento psicoterapéutico. La fuente de datos han sido los materiales clínicos elaborados por los psicoanalistas a cargo del tratamiento de cada adolescente. El procedimiento de análisis ha sido cualitativo, de tipo hermenéutico. Se presenta el análisis de varios fragmentos clínicos a modo de ilustración del trabajo empírico y de interpretación teórica realizado. Como resultados se han categorizado diversas modalidades narrativas y distinguido algunas relaciones con las intervenciones del psicoanalista.

This paper proposes to presents some clinical considerations about the ways of telling, relate, narrate the sexual abuse in psychoanalytic context and the analyst's position to it. As part of an exploratory design, we worked with a finalistic sample composed by ten adolescents who has been sexually abused in childhood and realize or have realized psychoanalytic treatment. The data source has been the clinical materials elaborated by the psychoanalyst in charge of treating of each adolescent. The analysis method has been qualitative, of hermeneutic type. We present the analysis of several clinical fragments as an illustration of the empirical work and theoretical interpretation made. As results we have categorized various narrative modalities and distinguished some relations with the analyst's interventions.